IIt’s been awhile since I’ve sat down to write. I have contemplated probably 5 or more times to blog with updates and then life and Little’s require something different 💜. To say God is at work in our home and life is an understatement. We are humbled at the gracious and loving hand of our Savior who has not left our side one moment in the last 3 1/2 months.
After God graciously spared the life of Matt (if you are curious about that, you can read my last blog post), he spent two months behind a desk as his body fought hard to recoup and regain strength and blood 😉. He went back on the road the end of April and he feels amazing! Thank you for all your prayers for healing and restoration. I jokingly have told him that was God sparing his life for a second time, so he better watch himself 😂😂. Between cancer and that episode it is evident to me that God is still writing His story in the life of my husband (& our family), and is not quite finished yet.
Many are curious about the new addition to our home ☺️ Greta is Gods favor on our crazy lives!! When I say she is a good baby, I’m being modest💗. I tell people everyday that she couldn’t be any better behaved, sweeter, or more of a blessing. She has won the hearts of every single person in our home, including her two big brothers who adore her… she’s even won the hearts of her cousins especially Her cousin Collins😍. We are thankful that God saw fit to give us all such a wonderful gift! She sleeps through the night, smiles, laughs, nurses like a champ and rarely cries. They say that the third child turns your world upside down and I tend to disagree. She has completed our little family unit and brought calmness and peace to our crazy world 💗.
Now about our boys 😊 Lincoln finally after 10 months of waiting got in to see a geneticist. He has referred us to Bascom Palmer Eye institute where Lincoln will undergo some testing. It’s the same test that he had done at Emory two years ago that traumatized him for life. I’m honestly not looking forward to it. They have said they may be able to sedate him for the test and I have teased that if they don’t sedate him they will have to sedate me 🤣🤣. They also have said it is imperative that we get genetic testing done. Lincoln has 1 of 400 different types of retinal distrophy. In order to find out the exact one, we have to have to have the genetic tests run. Our insurance company has really been giving us a hard time about lots of things lately and have said that we have to come up with $2000 up front for the testing. Please pray with us as we seek to give Lincoln the same opportunities we have given Hudson. As with everything else, we know our God owns it all and money is never an obsticle for him as it seems to be so often for us. Once we are able to diagnose Lincolns eye condition, we will know exactly at what rate he is losing eye sight, whether it’s just rods/cones or more, and we will then be able to find out if there is any treatment available to him. There are lots of clinical trials out there, but he would have to qualify so we have to know exactly what he has. We will also be watching Greta in the upcoming years. We know that Hudson does not have this, but since it is genetics, it is possible that Greta could be affected also. Please pray that she will be spared from this and that we can quickly get Lincoln the help he needs.
So many of you follow Hudson on Facebook and at church! If you have seen his posts or watched him get around you will see how far he has come! Vicky and I were talking just yesterday about how 2 years ago he was almost completely wheelchair bound😳. To think about where he was and were he has come makes this mommy emotional and thankful. He has come so far because so many have sacrificed to see him succeed. Our trip to St. Louis was eye opening and helped us to look toward the next year. Our goals have shifted, not because we were doing anything wrong, but because he has met and exceeded so many goals we have had for him. We are attempting to transition to crutches from the walker and are trying to focus on getting his calf muscles developed. His orthopedic Doctor was extremely pleased with his range of motion and hips. He said no surgery this year and he will see us next year 💗. It is always our goal to keep the surgeries as few as possible as well as to keep him progressing! It was so nice to have the assurance that we are doing the right things. Hudson has developed and matured in so many ways this year. Watching him graduate from VPK and looking back at where he was when he started makes me very emotional. If he continues to excel like he has his year, the sky is the limit! I watched him to a chin up the other day and thought…. man what I would give to have those arms and that strength 😉. He has and I pray always will be a fighter. There are hard days. The older he gets and the more things he misses out on doing with his friends (& he’s starting to realize it and make comments) reminds me that raising this litttle boy has never been and will never be a walk in the park. Giving him encouragement and understanding as well as support and direction will be an everyday job that he may require a little more than the normal kid.
So here we are. This mommy and wife’s heart has been ripped out of my chest more in the last 3 months than it has in years. I have watched all three of my guys go through hard days, most times unable to fix what is happening and I realize my complete and utter dependence on my Savior. I have been broken and poured out more times than I would like, but I find great joy in knowing once again God would choose me to walk through the hard stuff so he might be praised. So many paint a picture of the perfect family and the perfect life. Ours are far from it. However our family is exactly what God has created and ordained. So many have said countless times they think we’ve gone through enough and wish we could have a break. I’ve even teased that I have begged God for a chapter on Boring in our book 🤣. The truth is as much as I long for that, I know that if He is most glorified in the trials, then He alone will give myself, Matt and our kids the strength to walk through each one without waivering in our faith or wondering why.
God is at work!! There are so many exciting things around the corner and I don’t want to miss out on any of it! There is an old song a group I loved used to sing, the words “where You lead, I will follow, no turning round, no looking back, my heart is on a one way track. Where you lead I will follow. My life is in your hands, i will follow You.” This words pop in my head at least once a day as a reminder that I am running a race! It has an ending, but until I reach the end my eyes are set on the prize and getting distracted by things along the way will only cause me to lose focus. What does this season have in store for us? What will happen with Lincoln ? How far will Hudson progress? What if Greta has the same thing Lincoln does? Lots of legitimate questions, but my desire is not to get distracted by the questions and rather trust in God’s time, with his provisions and by His hand He will take care of us💗 Until those moments he works out all the details, we will remain Grateful for all He has already done!